#FamilyTalk is an informal discussion on family topics by people who know their stuff. These live chats are hosted on the
DODD Facebook page and offer the opportunity to watch, interact, and ask questions live.
Ohio was awarded the opportunity to participate in the National Community of Practice (CoP) for Supporting Families and will join other states in a multi-year effort to develop systems of support for families throughout the lifespan of their family member with intellectual and developmental disabilities (I/DD). This CoP is unique in Ohio because it focuses on all families with a member with a disability, not just those who receive formal supports.
Sign up to receive Ohio CoP news in your inbox!
Follow Along with Ohio's CoP work
2018 State CoP Dates
February 22, 2018
May 17, 2018
August 16, 2018
November 8, 2018
* All meetings are from 10 AM-3 PM at the Delaware County Board of DD, East Wing, room 165
Family Advisory Council (FAC) meetings take place quarterly and are open to everyone. The Family Advisory Council provides a forum for DODD to hear directly from family members about the issues that impact their lives, and provides the opportunity to learn more about the department's current initiatives from executive staff.
July 25, 2018
October 24, 2018
All meetings are from 10 AM-3 PM at the Delaware County Board of DD, East Wing, room 165
The FAC is guided in collaboration with a Core Group of family members and people with disabilities. Comprised of 12 members that reflect cultural and racial diversity as well as diversity of disabilities across the lifespan, the purpose of the FAC Core Group is to strengthen family leadership and ownership of FAC meetings, and offer guidance and input to DODD about the FAC.
2018-2019 Core Group
March 7 2018
September 12, 2018
November 28, 2018
Core Group Members
I am a mother of three children, my youngest, age 17 has Down Syndrome. I work for the Down Syndrome Association of Central Ohio.
I have a wife, two sons, ages 3years & 1year. One son has Autism. I am one of 5 siblings & one of my siblings has developmental disabilities.
I live in Franklin county with my husband, Carl, and three children. My oldest child, age 10, has Down Syndrome & Autism. I am actively involved in Down Syndrome Association of Central Ohio. Professionally, I am a Parent Advocate for Carepartner. Faith, faith, and enduring friendship are foundational and I am pleased to serve as an Associate Minister at New Salem Missionary Baptist Church.
I have a brother in his 50’s who is a person diagnosis with Autism. He lives in a house with 3 other men. He visits my home regularly.
I am a mother of a 13 year old daughter with Down Syndrome. I am actively involved in the county board of dd & community involvement for people with disabilities.
I am a mother of 5. My youngest son is 16 years old who we adopted. He was 26 weeks premature, and has quadriplegic cerebral palsy. I have experience with fundoplication surgery, g-tube feeding, baclofen pump, spinal fusion to correct scoliosis, power wheelchairs, house and van modifications as well as educational placement.
Amy is currently the Program Director for the Center for Autism Services and Transition or CAST at The Ohio State University. This program focuses on transition age youth and adults with autism and is active in developing health care options individuals with autism and their families. Amy is also the parent of a very talented artist with autism and his amazing and charming older sister. She and her husband are very active in autism initiatives across central Ohio and nationally.
I am a mom of 3 amazing children, 23 year old daughter, 16 year old son and 12 year old daughter. Our two younger children both have disabilities (ADHD and SLD). Our son has severe dyslexia that was just diagnosed this year. My husband and I work hard daily to keep good communication with the schools. I work as a Parent Mentor for Columbus City Schools. My motto is for Parents " You are not Alone".
I am married with two children, I have a parent who is blind & I am the guardian of an adult with Cerebral Palsy & an adult with Down Syndrome.
|here for a calendar of family oriented events around OhioClick |
Family Resource Network of Ohio (FRNO) is here to help families by providing resources, tools, and training.|
|||Guiding People Through Systems (GPS) is an online care notebook to help families, children, teens and adults with disabilities organize important medical and school records into one convenient online resource. |
Arc of Ohio is a statewide membership association made up of people with intellectual and developmental disabilities, their families, friends, interested citizens and professionals in the disability field. |
|||Good life Networks (GLN) exists so that our friends and loved ones who have disabilities can have lasting connections and friendships.|
||Administered by the
YMCA of Central Ohio,
ECRN+ Family Support strengthens and empowers children, youth, and young adults with disabilities, delays, and special health care needs, along with their family.|
|||Ohio SIBS provides advocacy, education, leadership and supports that will promote enhanced quality of life, improved public policy and increased services and supports for adult siblings (of people with developmental disabilities) and their families.|
|||The mission of
The Ohio State University Nisonger Center is to improve the lives of people with developmental disabilities and their families, develop and provide the highest quality interdisciplinary care, education, and research to support the inclusion of people with developmental disabilities in all aspects of community life.|
Autism Society exists to improve the lives of all affected by autism by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.|
|||UCCEDD at Cincinnati Children's Hospital Medical Center (CCHMC) is a University Center for Excellence in Developmental Disabilities Education, Research, and Service.|